Hi I’m Tiffany & I have brain cancer.
Diagnosed with an Ependymoma brain tumor in 2006, I’ve undergone countless surgeries since then: 8 craniotomies, 2 laser ablations and 2 stereotactic radiosurgeries to treat an aggressive, constantly recurring grade 3 Anaplastic Ependymoma. I’ve completed all eligible brain tumor standard of care treatments (6 weeks of radiation, Temodar, CCNU, Lapatinib with Temodar,). I’ve participated in 2 clinical trials at the National Institutes of Health, (immunotherapy – nivolumab, chemo – marizomib). Currently I'm on Carboplatin & Avastin. I hope to share my experiences with both existing and newly diagnosed patients and their families as well as anybody else who is interested. While there’s no “Brain Cancer for Dummies” book, as I think back to the beginning, I would have wanted the chance to talk with another survivor as I tried to understand what this exclusive cancer world is all about. Some of my favorite things in no particular order are: jigsaw puzzles, jeopardy, concerts, online shopping, and my niece.